I have been away for awhile. Been busy with doctor's appointments. I am set up to see a neurosurgeon as well but my appt with him is not until Dec 23. That's the soonest appointment they could get. Oh well it is what it is. :)
I did my homework on looking for neurosurgeons in my area and wanted to make sure my future doc had good reviews and a positive bed side manner and it ended up coming down to two different docs. So when I knew my pcp was sending me to one, I gave them both docs names and I said I would be ok with either one of those docs. I am looking forward to meeting the new neurosurgeon doc in Dec. I'm hopeful that my experience in working with him will be a good one.
So after seeing both the neurologist (I was being sent to him when I first joined on here) and my rheumy, I asked both about my fibromyalgia diagnosis and if having Chiari rules that out. Both still believe I have fibromyalgia. And that it is a separate illness regardless of the overlapping symptoms. In a group I belong to on facebook, this girl tried to tell me how I was diagnosed is not how they diagnose fibromyalgia and mentioned a blood test to determine that you have it. I asked my rheumy about that and he said he has never heard such a thing and the only way of diagnosis is by doing a physical exam and asking about symptoms and checking the tender points. I have the tender points. Have had fibro for many years. Lots of nerve pain and muscle weakness.
My neurologist said he wanted me to take magnesium to help with pain and melatonin for sleep. He prescribed fioricet for my constant headaches. It helps a lot. I don't have to take fioricet constantly as I can deal with the dull headaches. But when there is a headache that becomes full blown on the verge of migraine, that med really helps. He also increased my Lyrica from 2x daily to 3x daily which helps more then it did.
I recently went in for an EEG that he ordered and I am supposed to go in for a carotid ultrasound and he was referring me back to my heart doc for that. I see him again on Nov 13th to follow up with the EEG results. I could not sleep even though I had slept very little anyway because they want you to be sleep deprived.
My rheumy said magnesium was good for muscle and nerve issues and upping the lyrica is good as well. He made the observation the other day that I looked good and seemed to be at peace with whatever was going on with me health wise and said he was happy for me and that a lot of people don't ever get to that point. Truth is, there is nothing I really can do since there are no cures for these illnesses. So yes, I need to accept that this is my life and this is just how its gonna be. And while I do not enjoy the pain, I at least have names for my issues and that helps me to be at peace.
I am curious about my EEG and what it will show. Do you guys know anything about that test and what they are looking for exactly?