I am just freaking out. I had decompression in 2014 and yes I have syringomyelia but lately everything is getting a lot worse. Normally I am use to balance issues and much more too much to write. BUT lately I can walk tops 15 minutes before my legs go limp (paralysis) kicks in. Before this happens I feel pressure build up in my particular part of my spine (mid section) plus the pain everywhere becomes so intense. I have had issues where my legs in the past went limp and was in a wheelchair then I’d be fine after some time so it comes and goes BUT lately this has been happening every day, several times a day. I literally feel like a ticking time bomb every time I start walking. One day my legs just stopped and I was hanging on to the bar in the kitchen screaming wheelchair because it happened so fast.
Plus if I get upset these symptoms including all my symptoms will flare up quick. Someone suggested it could be intracranial hypertension or hypotension.
My neuro gave me steroids which helped for 1 day and then all my symptoms came back with a vengeance. She gave me steroids because my whole body was in sooooo much pain. But she did also want me to get a cervical & thoracic mri w/ and w/out contrast plus a lumbar mri w/out contrast which will be done next week.
My question has anyone lose their legs this quickly due to their syrinx? Or have any other advice with everything I stated above. Not sure if I should just stay in my wheelchair till I get the results so it doesn’t cause permanent damage.
Thank in advance. <3