I was decompressed back in December of 2017, and I am still miserable with my symptoms. I definitely have EDS, POTS, Mast Cell, Scoliosis, Gastroperesis as well. I’m doing my best to get evaluated for CCI and CSF leak, but I’m having trouble finding a doctor within my insurance that’s willing to help me rule these things out (or in).
I struggle with daily symptoms of horrible nausea, acid reflux, dizziness, heart palpitations, head pressure, lightheadedness, fatigue, blurry vision, digestive issues, etc. pain is the least of my symptoms, but I will get occasional headaches or migraines. I haven’t noticed much of a change in symptoms since my decompression surgery, so it’s left me searching for answers. I recently went out to the POTs treatment center about a month ago, and haven’t found that of much help yet either. I’m going to try cutting out dairy and gluten to see if that will help with my digestive issues, but I’m just so overwhelmed and I’m feeling really helpless. I don’t know what to do. If any of you have any advice or recommendations, please comment. I’m desperate and could use some hope.