Support Group in Illinois?

Hi! My 12 yr old daughter was diagnosed with Chiari 1 Malformation in February. I am looking for a support group in Illinois and haven't been successful in finding one. Can any of you help me?

If you go to there is a list of support groups. I have one in New New Jersey. The one the I see for Illinois is

Chicago Chiari/Syringo support Group
Fred Jacobeit
Phone: 708-■■■■■■■■

Try contacting Fred to find out when and where his meetings are.

Thank you!