Hi! My 12 yr old daughter was diagnosed with Chiari 1 Malformation in February. I am looking for a support group in Illinois and haven't been successful in finding one. Can any of you help me?
If you go to ASAP.org there is a list of support groups. I have one in New New Jersey. The one the I see for Illinois is
Chicago Chiari/Syringo support Group
Try contacting Fred to find out when and where his meetings are.