Chiari Online Support Group

Super discourage after Telling Employer

Found a super great job, similar to the field a studied in university. Been here for a few months, started to have a couple bad days with symptoms and flare ups. One day I just couldn’t handle it and called in sick. I told him I would talk with him about it on Monday (today), I told him that I had Chiari Malformation gave him the spark notes about the symptoms, and the just of it and why I took that sick day. His response to be was to basically as me if I was mentally disabled because I have a disformed brain, also if I’m going to have “bad” days that I should really think about not working.

Side note: I’ve taken one sick day. Even though I gift through my horrible symptoms daily to get through work.

Hey Lora,
Sorry to say it like this but, to those uninformed (or uneducated) anything brain means mental. I found that it was easier not to say, even the so called ‘educated’ are very quick to place judgement, some wanting to treat me as if I was crippled. If I needed time off I had my dr simply write ‘Medical condition’ on the medical certificate, others don’t need to know in my opinion. That’s between me and my medical professional.

Merl from the Moderator Support Team

Yeah, I know. I had a whole “speech” planned but he had cornered me about a sick day I took. It took me by surprise, he seemed very open and understanding in the past. I wasn’t expecting him to react that way. Specially when I’ve told him I’ve been having some issues adjusting to working full time in a relatively boring field.

Been were you are. You may want to consider filing fmla. Your pcp can list it intermediate and may need 1-3 days off. This should help him understand how severe chiari can be at times. It will also protect you, somewhat in keeping a position. Depending on if you state is a right to work state or not. In Florida employers can terminate your position for no reason whenever they want to.
Flma saved my job for 5 months then she found a reason to let me go. All I’m saying is fmla helped me for a few more months and made her work harder to get rid of me.
Good luck, but I suggest looking into family medical leave act.

While it is tempting to seek understanding and support from the workplace with both co-workers and bosses, I would strongly discourage that route. Missing one day of work does not require a full disclosure of medical information. Nor should it require an unspecific medical note.
When working with a chronic disease - deflect deflect deflect. “I was not feeling so great and thought it best to keep myself away from others” “I was just coming off something and decided to stay home”

Your manager now sees you with two negatives which does not make a positive! Having a brain problem and not getting along with full-time work. Best work on mending things with your boss but brush up on your resume as it is easy to be let go from work when you have just started. Advice from a workplace savvy co-worker (no need to divulge specifics) or friend or relative may assist in knowing exactly what steps to take.

Good luck with your job!