I am trying to come up with ways to cope with this darned chiari. I have a 12mm herniation and have yet to have my "neuro" in Knoxville respond to my repeated requests to a neurosurgeon for a consult on HOW to deal with the aching pain at the base of my skull. He is clueless if I need surgery and told me to "cope as best I can" and to consider Cymbalta for the pain (huh???).
I start my days out feeling ok, but as the day goes on my neck is throbbing. Especially if I look side to side. Or up. Or down. (try avoiding all those activities as my neuro suggested all day long...yeah...)
My biggest challenge is I can't find a pillow that doesn't compress the lower part of my head and if I say, lay on my back or God forbit sit in a chair with my head resting against the chair, I feel like someone hit me in the head it gets to achy. So I end up twisting and turning trying to get comfortable.
I am trying to come up with non-drug pain relief and so far am not having much luck. Any suggestions? I have my fingers crossed I will get a referral SOMEWHERE in Tennessee for some long term suggestions. I know nothing except I have the 12 mm herniation apparently with no blockage of spinal fluid but that is about it. Thanks everyone.