Hi everyone. I had surgery in April 2012 at CC. I was having odd behavior and hallucinations once I got home after the surgery then one morning I woke and my husband noted that I was leaking spinal fluid so he took me to the ER. The ER refused to treat me since I was only 2 weeks post op, so they transferred me via ambulance to CC (4.5 hour trip). Turns out I had developed bacterial meningitis along with several other infections (both bacterial and viral). I underwent another surgery after being admitted to CC and was sent home with a PIC line with antibiotics to treat the meningitis. I have absolutely no memory of any of these events. It took me several months to finally come around and realize my surroundings. The whole process is still very confusing to me but I am starting to have a few "flashbacks" here and there.
Anyways, I have had extreme neck pain since my surgery but figured that it was normal considering.....but now I'm starting to have so many old and new symptoms that I'm concerned. I am so frustrated. I live in Indiana and there are no chiari specialists that I can find in this area. Do any of you know of anyone? There is only one group of neurologists here in Fort Wayne and they were SO mean to me in the beginning of all of this that I just can't go back. I went to them with all of these strange symptoms and they diagnosed me with Chiari; however, they were adament that my symptoms had nothing to do with Chiari and that it was just in my head. What?! I just need to find a neurologist that is knowledgeable about Chiari and was hoping not to have to make such a long drive. Also, my neurosurgeon at CC doesn't do post op follow ups once you are 1 year post op. Please help.