I am so tired of this dance. Saw another neuro today for a second opinion. She was not impressed by my Chiari at all, said my exam wasn’t indicative of it, but I am showing certain neurological changes so I’m getting a cervical MRI, bloodwork, blah blah blah. She looked at my MRI and said she didn’t think it looked like Chiari although maybe if she was bring generous she’d call it a Chiari 1. I don’t see how that’s possible looking at my MRI, but what do I know? I’m not a doc. This is so fatiguing and discouraging.
She started with an exam, and while she found some neurological symptoms (hand tremors, left arm presented as weaker, etc.), she didn’t think they were attributable to the Chiari.
So, I had a nerve conduction test–that was fun–and right ulnar nerve isn’t great but otherwise pretty unremarkable.
She wants a host of bloodwork checking for another autoimmune disease (I have Hashimotos thyroiditis), a cervical MRI, and an EEG. She’s requesting the radiologist measure the Chiari herniation as it’s not reflected on the report.
Now I feel foolish for even considering the Chiari.