Chiari Online Support Group


I’m looking for recommendations for a neurologist, not a surgeon, to help me with getting a handle on my pain, concerns that I have POTS and EDS, plus help with my sleep situation (diagnosed with sleep apnea, and I use a CPAP). I’m sleeping 14 hours a day since surgery 2 years ago. I was diagnosed with tachycardia and am currently wearing a heart monitor for 30 days. I’m also now having problems with digestion. I was diagnosed with a faulty gallbladder but the surgeon was hesitant to remove it.
Anyway, I need a neurologist who can help me with my overall health and understand how all these things go together. I will go anywhere, just as long as the doctor has knowledge of chiari and all the comorbidities… especially Vagus nerve damage and how to treat it.