I’ve had shivering (I would say chills) since surgery last month and last week I started checking temps. I’m having temps of 101-102 F multiple times daily.
New neurosurgeon thinks I’m having an ongoing chemical meningitis. Thinks it’s related to dura that was used.
I have another surgery scheduled for March 5th (next week).
I’ve had a decompression surgery on 11/29/18, then had CSF leak (between sutures; like a faucet) which resulted in another surgery for REVISION on 1/3/19. Then developed a huge pseudomeningiocele and was convinced a VP shunt would take care of it. So I had shunt placed 1/31/19.
I’m in much worse condition than I started. I had headaches with straining (tussive headaches), constant heaviness of head/neck, and fatigue. Now after the surgeries, I have constant headaches, tussive headaches, nausea, fever, chills and extreme fatigue.
My surgeries were done with a neurosurgeon who now I know is not a chiari expert (has barely done any chiari surgeries). I had only gone to him to review my MRIs as he was available the soonest but when I was there he said I need to be in CCU immediately due to severity of my condition (per MRI images). I got scared, got admitted and had surgery. I had an appointment with a chiari expert a few days later but couldn’t go there as apparently I needed to be in CCU with neurochecks every hour.
My surgery next week is with Dr Frim who’s considered an expert at these surgeries and I’m praying for better results.