So I was trying to think of some questions to ask when we meet the NS. What are somethings that i should ask and need to know? We know nothing at all about this!

Will do thanks

When is your appt? We are in the same boat as you. I have been researching a ton. My son just got diagnosed and we meet the ns a week from Thurs. Are you meeting to schedule surgery or just a consultation after being diagnosed recently?