My 30 month old had the decompression surgery 4 months ago. She was diagnosed with severe global developmental delay and chiari type 1 when she was 18 months.
The positives of the surgery are… Her wound has healed…her head banging has gone down a lot… She has started walking without help… Her tremors while standing or stacking has gone down… She seems to be more vocal… She seems to understand more… Is more friendly with ppl she knows.
My concerns… She is not expressing herself verbally or with signs even when she is hungry or in pain… She doesn’t seem interested in social gatherings, doesn’t care about who is around her… More scared of new ppl, places, pets, crowded House (she seems to like the mall)… Scared of ceiling fans.
Am not sure if I should be concerned of these things but am unable to get her to cooperate for any therapy sessions… Has anyone else gone thru something like this… Can anyone guide??