Hi I’m a mother to a 6 yr old boy. He is showing no signs of problems but through a ct scan from a fall ,checking for broken facial bones, he has been diagnosed with 1) basilar invagination
2) occipital c1 assimilation
3) thoracic syrinx
We are devastated and overwhelmed
The neurosurgeon here in Columbus Ohio proposed to do surgery of 1) posterior decompression 2) c1 laminectory 3) occipital cervical fusion 4) rib Graft harvest
Basically put a plate ,two screws and his rib into his neck to fuse it. This will leave him with no mobility of his neck.
Please help us. Has anyone heard of this? Anyone had this done ? Anyone know of a dr they recommend. I have sent our Mir to Boston, Cincinnati , philly, Utah and Iowa . I need numerous second opinions . I’m scared for my son . This surgery will forever change his life.
I’m new to this site and I would appreciate any help. Thank you !!