I am 44 years old and found I had a Chiari Type I in 2009. Actually, the MRI I had for some sort of neurological symptoms had it documented there, but I was not told until 2013. I had six MRI's for various neurological symptoms between 2009-2015. The 1st scan read "Borderline Chiari Type I", the 2nd scan in 2009 read "Stable Chiari Type I, cerebellar tonsils at 5mm", the 3rd in 7/2015 read "Chiari Type I, cerebellar tonsils at 7mm". I had that scan prior to being seen by a Chairi specialist in early September. She had ordered a CSF Study/MRI. That scan can back directly to me (via the Patient Portal) with "Cerebellar Tonsils at 3mm. Does not fulfil diagnostic scan measurements for Chiari.
I've had unexplainable, life altering neurologist symptoms since I was 16. I thought I had finally, FINALLY found the answers!!. How is it now that I finally find a "specialist" my Chiari tonsils lie at 3mm? 3???? I just had one done two weeks before that and they were at 7mm. Does this happen? What is going on here?