Our son has two neurologists that are both wonderful for different reasons, however are not totally and completely well versed in chiari. I’ve heard the name Dr.Oro but he’s for grown ups. Anyone know of anyone?
I also think I been referred to a kids with chiari support area but either couldn’t get to it, due to my poor support site navigation skills, or perhaps a part of me can’t bear to read about more people who suffer like our son does, and as each of you have and still do. If there’s an easy link, I may give it a peek. Thanks