Chiari Online Support Group



Hi all,
This is my first time posting here. I was recently diagnosed with Chiari Malformation Type 1 in March after experiencing left sided numbness. Cervical and brain MRI both showed 8mm herniation. My symptoms seem to come and go as far as numbness, neck aching/headaches, but the one thing that constantly bothers me are heart palpitations. These started in May 2016 for me, worsened during pregnancy in July 2016-February 2017, and have never gone away.

I saw a Cardiologist in 2016 who has been prescribing me Toprol to manage them. There has never been a cause identified for the palpitations, but since the Chiari diagnosis and seeing several neurosurgeons, they think that the Chiari is the culprit. They advised that I be further evaluated by an Electrophysiologist to see if it actually is an electrical problem in the heart or the Chiari causing the palpitations. I have an appointment for 6/20 for evaluation.

Does anyone else suffer from PVC’s/palpitations/irregular heart rhythms from their Chiari? It’s such a horrible feeling, and often time scares me.


I was diagnosed with Chiari 10-11 months ago now, and my MRI’s show a 5mm movement of my cerebellar tonsils, show that my cerebellum is longer than it should be and is physically in my neck; and then I likely have a tethered spine and a neck issue of bending downward and forward more than my neck should be alongside my Chiari Diagnosis.

At night, a few nights a week, I have what feels like a “racing heart”, a “double heart beat”, and either pain or pressure in my chest, pain will radiate down my ribs, and i’ll have difficulty breathing. I’ve had my heart checked out and have been told it’s 100% healthy, no murmurs, nothing, likely just symptom of my Chiari.

The cardic symptoms scare me too. I find that taking deep breaths when my episodes happen helps, it helps me calm my mind, and keep my physically calm. I let the episode ride itself out, and try not to panic, it’s easier said than done. I’m not sure if this helps much, but it’s how I’ve learned to cope with my episodes and what I’ve been told about them.


Hi, I have had problems with palpitations my whole life. They tend to happen when I’m sleeping, it wakes me up. As a kid I used to tell my sister my heart was racing.



I have only recently begun experiencing palpitations as a result of my Chiari (assumed, I have not had that medically confirmed) and I completely understand why that would cause worry. In my case it feels like my heart is beating double time, but I haven’t done anything “strenuous” to cause such a feeling.

Much like tinaj, I have been trying deep breathing exercises to get through it. Controlling my breathing, if nothing else, helps to ease my panic.