Fairly certain my issues are at least in part CM1, if not completely - its hard to diagnose and symptoms can be partially/fully CM or something else. My symptoms started at 52(primary cough headaches w/CM1 via MRI), went mostly away for a short time then came back worse at 53 adding dizziness (2nd brain MRI showed CM1 was worse). Most believe that this is congenital, but an earlier cervical MRI(herniated disc) showed no sign of low lying tonsils for me.CM w/symptoms in general is pretty rare, but even more so after 40. My neurosurgeon stated that I’m a very rare case, don’t know for certain what causes it, and not enough stats for a definitive procedure, although decompression is the most likely 1 if needed - fortunately am able to manage my symptoms and don’t appear to be causing anything permanent for now.
2 theories for cause:
- pressure from above (eg: add’l fluid pressure, deformed/small skull, tumor, head trauma, etc)
- pulling from below (eg: CSF leak, syrinx, tethered/binding cord(Filum terminale disease).
Filum terminale disease is a bit controversial w/the controversy mostly being diagnosis. Most believe any issues should be visible by MRI, but some claim issues may exist that can only be found during surgery - am currently researching this possibility, but far from any action.
Again, everyones different but some add’l things that seem to help me(in add to sleeping position)…
Avoid: bending over; straining; lifting anything heavy; overhead exercises; ‘hi blood-pressure’ exercise; sitting down(I use a standing desk, try to limit my driving and lay down multiple times during the day)
I have a very strict diet that’s too long (and individual) to list but some general things…
eat foods that keep me regular,
avoid…sugar; simple grains; salt; nuts; and foods w/tyramine and histamines (seem to trigger those with migraines)
don’t overeat (again, a pressure thing)
caffeine via coffee 2x a day - note: I used to avoid caffeine in the afternoons because it affected my sleep but now have no issues and am certain it helps me, but threre are those in the CM forums that say it makes their issues worse.
Hope this helps.