Hello everyone and welcome to @Gwynboom,
I wanted to remind everyone about our category for parents! It is called ‘Parents and caretakers of children with Chiari’. You can see it if you just click on General in our top ribbon! Many of the posts are about younger children, but it can be very useful, especially to learn what to say or how to approach those with chiari!. You can also search keywords such as “parent” in the search bar and find posts that may help!
Let me know if you are having trouble finding a post or topic by messaging me!