I recently underwent MRIs for my back and neck after more than 20 years of doctors telling me I was "fine", just needed to modify my daily activities. The results on my records state I have mild cerebellar ectopia, scoliosis, and several disc protrusions in the cervical and lumbar areas, reversal of the cervical lordosis, some degenerative disease, etc.
Like many of you, I have been diagnosed with fibro (2006), which may be accurate, but once I had that diagnosis, none of the docs wanted to do imaging tests. When I was in the military, my complaints were mostly chalked up to stress and a desk job. No one would do xrays or mri. Last year I applied for disability compensation through the VA, and they ordered xrays as part of the exams. Well, the xrays proved there was degenerative stuff. My new PCP ordered MRIs last month after I explained that I have suffered from muscle spasms, migraine, dizzy spells, whooshing in my ears, twitches, numbness, burning sensations, and erratic BP swings related to my posture. I won't go into the eye issues! I wanted to try some muscle relaxants, and this was the first time I had asked for any type of meds, so he took it seriously and ordered the MRIs. The results are posted above.
My dx is not Chiari, but from my research I see that I have a similar issue with the cerebellar ectopia, so I decided to just join you folks and see how others cope with this, maybe learn what my next steps should be. I am under VA care now for several conditions, and from my experience, they will not contact me about my mri findings (I accessed them online). I have no idea what I should talk to my PCP about or if I should request any referrals. PT would be nice!
I am only 43, but it seems like my body is falling apart, and I need to take care of my teenage daughter and my disabled mom. I just started graduate school, so I need my brain to function properly too. These issues affect my right arm and hand a great deal, and sometimes I lose control and mobility.
Okay, I feel a bit narcissistic talking about me so much! Thank you for hosting this support forum, and thanks to those of you who took the time to read this. I look forward to some great discussions!