I did see a doctor at Loyola for a second opinion but I don't actually remember his name. Do you have Chairi or Trigeminal Neuralgia? I had to deal with both. So needed a doctor that was familiar with both of these. I know there is some doctors in Madison that do some of this work as well but I don't know there names. Sorry.
I was wondering if you ever sought another opinion or saw another neurologist or neurosurgeon in the Chicago area. I am from the northern suburbs of Chicago and am trying to find a recommendation for that region. I am familiar with the St. Charles area and know that Geneva is not too far, but I wanted to ask if you saw any other doctors near Chicago or if even during your research you came across some that you didn't end up seeing.
Dr John Brayton, in Geneva IL did my Chairi Surgery in March of 2012. I have also seen and would recommend Dr. Sekula in Pittsburgh PA. Dr. Sekula trained under Dr. Janetta. I would recomment both of these doctors. They are both Neurosurgeons.
My neurologist is Dr. Santwani. Also Geneva IL. I would highly recommend him as well. When I was diagnosed with Chari he got Dr. Brayton involved right away and they have worked together on my case.
Not sure what additional information you might need. Let me know. Thanks.