My name is Jo, I live in the UK and I'm 23 years old. I found out today that I have an abnormal MRI - "tonsillar descent of 8mm" - 8mm Chiari malformation. I do not yet know what the neurologist is going to do with me. I'm waiting for a follow up appointment.
I'm plauged with a lot of symptoms, which everyone put down to chronic fatigue syndrome. These started back in 2011, and have gradually got worse. They are now greatly affecting my ability to function. I am currently off work sick. They have got a lot worse over the past 3 months.
The symptoms are as follows: blurred vision which sometimes turns into double vision, severe headaches at the back of my skull, which spread towards the front of my head (this feels like this horrible pressure), migraines, loss of sense of smell and taste, choking on food and liquids, hoarse voice with coughing, repeat chest infections and pneumonia in 2012, "brain fog", cognitive dysfunction, difficulty with word finding/having conversations, balance problems/constantly tripping over and walking into things, bowel and bladder issues, dizzyness/vertigo, fainting spells, tachycardia, neck pain, muscle weakness and pain, tinnitus, numbness in my fingertips and toes, chronic pain (am on a lot of meds), severe crippling fatigue, memory problems, nausea, depression, anxiety, insomnia, problems with co-ordination, chest pain. There's probably more that I've forgotten.
I keep forgetting how to spell words as well...have to keep using spell checker :-S.
I have a lot of medical conditions....I don't know whether I'm allowed to list them or not?
I'm also on 23 medications, again, I don't know if it's okay to list those?
I've joined this website because I'm feeling quite confused, anxious and could do with some support and advice. I'm quite scared about this 8mm malformation.
Sorry that this is quite long