First things first, I’m a terrible speller and I’ve recently noticed that when I type I leave out a lot of words. Sorry ahead of time if things read weird. At least now I think I may know why! (Actually, my whole life whether typing or writing I’ve transposed P and B…now I wonder if everything that has ever been “weird” about me is because of this.)
Wow…so I got a diagnosis after an MRI last Tuesday. Then I blew out of town and headed to Las Vegas for a vacation. I was able to read half of Conquering Chiari on the plane. I’m not sure it helped. Today was my first day back to work and I cried all morning.
Reading more about it has given me a lot of clarity to the mystery that is my body. I’ve always been prone to headaches and just thought maybe I wasn’t getting enough water or something. I also have really lax ligaments and used to do a lot of yoga so that hurt my body pretty well after a few years. Luckily lifting weights helped some, but there would be times I would have nausea or headaches lifting (primarily after pushing the sled with my head down!).
In 2016 I was kind of beside myself because I couldn’t get over colds. I had colds from about October 2015 through May 2016. With little rest in between. I went part time in September of '16. I think my bosses think I’m a “lazy millennial”. I tried a lot of things. I’m vegan so I had my blood tested for everything from B12 to iron to zinc. EVERYTHING was normal limits. Healthy as a horse…right. I thought maybe I had a parasite so I did a cleanse. I finally just said to myself “oh well, you have to just do less than other people,” but that felt yucky too. Having a diagnosis does make me feel a little better.
I also get major depression which is frustrating. This also is relatively new to me and I hate the medicines I’ve tried for it. I see a neurosurgeon in a couple weeks. In the meantime, I’m grateful to have this forum to look through and learn from.
I have a million questions.