So I’m new here only joined today bit I am also relatively new to Arnold chiari malformation& syrinx. I was diognosed back on 21/09/2016 when I was found collapses and unwell. As a result of this was rushed to hospital and it turns out I had meningitis and pneumonia. As they had to do scans to see if anything had spread, they had to do an EEG (Electroencephalogram). They then found that I had complex chiari malformation with syrinx deformation. Since then I have had admission after admission, collapse after collapse and treatment after treatment. What I’m suffering with is pretty complex as mine has caused a complete blockage so I have been told I will need surgery… (cranio vertrabrle decompression) but also have drills with shunt to stop the cfs fluid building back up. I had to see the brain specialist today and it’s all become g a little overwhelming and I’m getting quite emotional about it.