Chiari Online Support Group

New Member

Um…hi. So, I was diagnosed with a 8 mm CM and a “very large” syrinx (starts at the C1 vertebra and goes to T5, I believe) just last month. I don’t have headaches, which I’ve read a lot of people do. I do have nerve pain in my right jaw, neck, shoulder, and arm.
And I finally got some meds for the pain (mobic, tizanidine, and gabapentin). Yay!

But I can’t get in to see the neurologist until July 5, so…I’m just kind of really confused and frustrated and waiting for July because right now all I know is what I’ve read on the friggin Internet.

Anyway, on a more personal note, I’m 25, live in Kentucky, and my current hobbies are learning Polish and Spanish, babysitting my niece, and looking for a job compatible with my social anxiety disorder and chronic pain. :smirk: