I’m glad I found this site. It’s been quite a journey. I am 31 years old. When I turned 30 I started having numbness in my legs and back pain. Low grade full body tremor. Occasional headaches.
CM-1 was found on MRI. 14mm herniation. The PA that I saw stated that my symptoms were not caused by the CM. She referred me to a neurologist. He said the same thing. He was stumped.
Over the past year I began having headaches. They are about a week long. Occipital. A day of occipital neuralgia too. That is when it’s at its worst.
I decided to go to Mayo Clinic Rochester. They did an EMG for the leg symptoms and it came back clear. They didn’t do anything else. Due to the onset of symptoms happening after a very traumatic experience, they gave me a diagnosis of Conversion Disorder. Referred me to psychotherapy.
I’ve done psychotherapy and the paresthesia did not subside at all.
Finally decided to go to a chiari neurosurgeon. Fantastic guy. He stated the headaches were definitely chiari. He said to treat the symptoms of the headache, try to minimize stress, and come back to him if things get worse.
I am not sure what he means by worse. I should have asked, but the pattern of symptoms seems to follow a cycle.
Every few months, I feel very stressed. Then the headache starts. I don’t need to explain how bad the headaches are. Then tinnitus. This lasts a week and is very debilitating. During this time I have sleep problems as well. I’ve noticed I become depressed and (apologize for being to straightforward) but I have noticed that during this time when I am intimate with my partner, I have orgasms that feel incredibly weak. Almost nonexistent. Maybe because of how I am feeling?
To manage the headaches during this time, I take OTC NSAIDs, cold compress, and just try to get my stress down.
Thank you for reading this. Sending love to you all.