Hello, Spring of 2019 got diagnosed with Chiari 1 Malformation, I had never heard of it. Then my neurologist referred me too Neurosurgeon, who ran extensive amount of test on me. July, 2019 I meet with my neurosurgeon who informed me that I had Tethered Cord Syndrome. Ok, I didn’t know what Chiari was and now I never heard of TCS.
I do now, Nov 19th, I had my TCS untethered I was released on November 23rd. From Nov 30-Dec 16th I experienced the worst pain in my right quad, on Dec 13th they decided to do a MRI, and on the morning of Dec 14th, I received a call from my surgeon, informing me I was leaking CSF Fluid. (what is that) I know now. On Dec 16th I was readmitted to the hospital and Dec 17th, I had surgery #2 to repair leaks and to address a arachnoid cyst that was discovered on the Dura. I was fitted with a shunt to drain spinal fluid for 5 days, I was discharged Dec 23rd, I went home and once again, I begin experiencing headaches worst then ever, and severe dizziness. On Jan 27th my wife noticed my incision was protruding out. I had a scheduled appointment with my neurologist on Jan 28th. As soon as he felt the incision he said your leaking again and immediately sent a note to my surgeon and ordered a MRI. Jan 29th had a new MRI and Appt with Surgeon was scheduled Jan 30th. I meet with Surgeon once again he admitted me to hospital and scheduled surgery #3 for CSF Leaks. This surgery two more leaks were found in the lumbar area and they did a Brain MRI showing Chiari sitting at 8mm.
So here it is Feb 17th, my body is physically exhausted and I am mentally wore out.
Would love to hear from you,