I am newly diagnosed 10/5/17 with Chiari 1 at 5mm with scattered hypertensive foci likely representing prominent prevascular csf spaces. I started out going to my doctors because my migraines had worsened to an every day occurrence. She prescribed me medication that didn’t work came back an she upped the medication and I told her about the other symptoms I was experiencing nausea,dizziness,memory loss,loss of concentration,numbness in my fingers and toes, worsening of pain and blacking out when standing and bending over, tinnitus, the feeling of constant pressure in my head, and fatigue. She ordered an MRI and a cbc. My doctor xalles me in less than 24 hours that MRI came back with the chiari and my cbc said my white bloodcell count was low so she was putting in an urgent request to the nuerologist. 3 days later im in the nuerologists office and he completely disregarded my chiari saying that’s just a baby chiari it wouldn’t cause my symptoms. And that if I had symptoms I would know. He upped my migraine medication (that doesn’t work by the way) and told me to come back in 3 months
I am very frustrated I don’t know what to do at this point. My chiari may be small at 5mm but my symptoms are not. I’m considering going to the chiari institute in Michigan even though I live in California. Any advice would be appreciated.