I'm getting conflicting info on whether of not I should be seeing a neurosurgeon vs a neurologist for Chiari symptom management since I won't be getting surgery for I would l think at least a year or 2 as long as there's no syrinx and the symptoms don't continue to get worse.
I'm over 100 lbs overweight, with a bacterial infection that could take a year or more to cure (fun right?!! lol), as well as asthma, and the doctor is VERY concerned to say the least about operating on someone so "unstable".
However, when I called my neurosurgeon to make a follow up appt. I had no idea I should have had another MRI 6 months ago..(The Chiari, I think, is around 6 or 7mm) his staff told me I needed to see a neurologist but when I did some on line research it seems to me that most people once diagnosed, whether they opt for surgery soon or not are "maintained" by a surgeon not a "ologist"
Also, please forgive me for my bad spelling and grammar...It is very disturbing to me that the Chiari is taking away something I used to be very proud of...Still it pales in relation to some of what y'all are suffering with <3
Thanks for listening!