I am 17 and really need some help at the moment!
March this year I had decompression surgery. Previous to this I had severe headaches, muscle weakness, numbness in hands and feet, lots of back and shoulder problems. My surgeon, who I saw for 2 years never really gave me much information or options. Being honest, he never really made it clear to me what was wrong! I thought I was going mad, which was so frustrating as my friends and family would not believe that I actually had a problem. Following my decompression surgery, which of course was painful, I started to feel amazing - I had forgotten what it was like to be pain free!! And then two months ago my symptoms came back, but so much worse. I had lumbar punctures to see if I had high inter-cranial pressures which came out around 24, and an ICP probe which suggested high pressures but it snapped and so I was just told to go home. I have been prescribed multiple pain killers but nothing seems to touch it. I am trying hard to study and soon will be applying to university. I spoke to my surgeon recently and so he said we would do another ICP probe to see if anythings changed, which is in the next couple of weeks.
I really need some advice as I no longer know how to cope with the pain. I feel so weak admitting it but I am finding it so hard right now. My surgeon said that multiple doctors have seen me and don't understand what is wrong with me as my CSF has apparently improved. I feel so stupid like its all in my head but I know it cant be. When I lie down and bend down, I get a headache straight away, and during the night time I feel as though I will vomit if I move my head.
I really dont know what to do, and any advice will be really appreciated