So first let me introduce myself my name is Ivan i am 32 years old. I have a unique situation or at least what i think is unique.
So 2 years ago i had a TBI when i fell out of a cab of a tractor trailer ( 18 wheeler) and landed on my head and neck. I was told I had a concussion and whip lash. A few days after the fall i started having tingling in my hands along with really bad neck pain and headaches at the base of my skull. Drs told me it was all from the fall. So few months later after seeing a nero and the symptoms not getting any better in fact had more pop up ( i am going to list them all when i am done) I got my PC to order an MRI of my neck. It was at this time that they found a type 1 chairi (7 mm) and a syrinx. So i went to see a neurosurgeon who did a MRI of my brain. At which time it showed “something” on my left side of my brain. He also said that if they syrinx didnt go away in a year he would have to drain it. But they switched focus to the “something” . Several months later and a few new symptoms including lower back pain that was so bad i couldn’t walk they did a nerve test in which it showed issues with my L5 so they did an mri and it came back normal.
So FF few more months they did a second brain MRI and that “something” got bigger. So they sent me to a different neurosurgeon who also did a brain MRI at which time the something turned into many somethings. So it was at this point they started thinking it might be MS. So they did a spinal tap which didnt give a clear answer. So more test later none really coming up with a clear answer either way i had issues walking again with balance mostly on my left side. So they admitted me to the hospital and treated me for MS with IV drugs.
So at this time they are saying its MS but what i want to know is if anyone has been told they had ms with a Chiari? Also if anyone had symptoms start after a neck or head injury?
I just saw a third surgeon and first thing he mentioned was the Chiari as well as the other stuff i have going on with my neck. Narrowing as well as they syrinx and disc issues.
the symptoms i have or have had at one point in the last two years are in order of most common are as follows.
Neck pain along with cracking that sometimes is very painful
head ache at the base of my skull and one sided pain on the left side
left eye blurry and redness/watery ( eye Dr said no signs of ms)
numbness tingling in hands and feet
muscle fatigue arms and legs
cold feeling in feet
increase need to pee
ringing in ears
fluid like sound in my neck
been a few others but minor.
So if anyone has dealt with anything like this or knows of anyone who has please let me know.
I welcome any advice people can give. ( i was on this site 2 years ago think it was the old site so if i sound familiar that is why)