I recently had a fairly terrible appointment at my current clinic, but 2 radiologists agreed on Chiari 1, a tiny syrinx, and a duplication cyst. I've sent all my stuff to a different clinic and am just hoping for review and a referral to a better specialist in that system. I'm honestly more worried about my cervical stability. Nothing on the MRI report (thoracic MRI) noted my cervical spine, but did mention that my thoracic spine has normal kyphosis. Maybe more details would have been explained on a "cervical MRI"?
Before I even had the CD of my MRI images, I dared ask the terrible one question, and that was if there was a way to check cervical stability (I feel like holding my head up is an awkward project...and I'm drained by living in my body and primarily upper back pain, spasms, and pressure). Anyway, he said, "I don't know...check with rheumatology." Jerkface. Then I got these images. My neck isn't even curved in the right direction anymore and I'm not very happy about what's going on around some of those upper discs. A few questions, though I know I'm not hoping for medical advice here...
Could the situation around C3-7 be referring pain to my upper back (those muscles are also weak, in spite of PT and my work...my work as a musician really depends on my upper body strength and motor abilities)?
Is this normal for 30-something? I understand my discs and curves won't stay perfect forever. Thoracic spine looked pretty good. This looks a little terrible...like it can't keep curving in the wrong direction.
Does this look like possible EDS cervical issue, Chiari, or some other cranio-cervical instability? All I know is the wrong curve of the neck (kyphosis in this case) is a sign of instability. I'm angry nobody has put this together but I also am trying to patient as I hope to locate the right doctor (I have some other hypermobility or joint instability symptoms in other places, but not a huge and obvious list)
I sent the clinic I want to switch to all my info and asked about cervical stability...requesting a Chiari specialist and/or upper cervical review. My posture isn't terrible, but my neck isn't keeping up with the weight of my head. Will a Chiari specialist know how to check for EDS or do I also need to ask to meet with a rheumatologist?
Do the discs look okay? This was a laying down MRI. All of my pain happens from being upright, worse when still (vs walking).
I'm not sure but I can't help but wonder if the unmentioned neck situation is a bigger issue and more related to my pain. My doc said my Chiari (approx. 5mm but also not terribly squished) should not account for my pain, neither should a small duplication cyst (also congenital).
I wish some doctor would take this all more seriously because I'm a musician, have already quit playing professionally...if I can't teach I'll end up on disability, but I really need to be able to work for about 30 more years!!. It feels like they are okay to put you on meds and ignore the pain until there is some disaster, like you can't breathe or swallow, then surgery. I'd love a thoughtful doctor to just let me know if there are things I can do NOW to prevent surgery, whether different PT, traction, whatever.
Any thoughts appreciated...non-medical opinions on what this might look like, questions I should ask the neurologist I see this week (useless?) or different neurosurgery specialists I hope to see soon.