I would like to share my opinion about this list, as I have had experience with many of these doctors. First of all, there are several that did my daughter NO JUSTICE. Her Chiari was not easy to diagnose, as her tonsils were only herniated to 5 mm. She saw two of the doctors on this list (one in CA, one in NV), who both claimed Chiari was not her issue. I also consulted with several other doctors, who claimed that she had no issue or who did not follow up with me after I had sent them her MRI. I'm sorry to question their expertise, but honestly, if they are not familiar with measuring the CSF flow, the measurements of the skull, the pointy shape of the cerebellum, and other less common signs of Chiari, I don't believe that they are knowledgeable in it. Had I bowed to their 'lack of expertise' & not continued to pursue my daughter's issues, she would be forced to live a life full of pain & invalidity. Thankfully, I continued my efforts & found 3 doctors on your list who found her problem using less familiar methods of diagnosis, a true sign of knowledge. Dr. John Tew of Ohio discussed with me on the phone, several of the signs of Chiari that he was able to identify. Dr. John Oro, of Aurora, CO, also diagnosed her Chiari & did her brain surgery. Dr. Daniel Heffez, of Milwaukee, WI found her Tethered Cord and did her detethering surgery. I am happy to see that they are the two doctors on the list who come the most frequently recommended. Heffez is listed 17 times, Oro 16. I will tell you that they both were fantastic & deserve the top 2 frequently recommended. I would also like to tell you that I have few resources or finances, but I work hard to research any assistance available. It also helps that both doctors accepted her insurance, which is available through her father. My point is, don't think that it's not a possibility & don't give up until you have found solutions. And of course, if you are able, I highly suggest Oro &/or Heffez.