Looking for a different neurosurgeon and neurologist in Oregon, hoping someone has info. Ok back in Feb.of 2014 I had my Suboccipital Craniectomy, Extradural Craniocervical Decompression surgery. Anyways I had a window of pure bliss (no to little pain) for about 3-4 weeks (March 2014) then I was accidentally given a bear hug and poof "pain free" went away. And slowly since then things have started to get bad again, although I have had about 3 falls down stairs in the last 6 months and things have kind of stepped up a notch (issues and frequency of issues). And since this last fall i had in mid March 2015 especially the head and neck pain have gotten even more worse (the kind that sometimes it feels as though there is a stick shoved up through my neck into the base of my brain, or every time I turn my neck side to side it sounds as though there is metal ball joint or something rubbing ...I don't know its really hard to explain, Or that again the pressure headaches are slowly coming back, all the different versions of headaches, and last but not least is this area of pain pretty substantial on the left a bit behind my ear and runs down the mid neck on the same side, oh and my skull is very sensitive like bruised.
Anyways my surgeon that did my surgery left like 5 months after my surgery, and the guy that replaced him believes that once you have surgery your healed pretty much and refuses to really listen to anything I am saying.I have to find a different neurologist he is the only "headache" neuro at OHSU and he doesn't believe in doing decompression surgeries.
Sorry this was a lot longer than I had intended. But my anxiety level goes through the roof when having to find new doctors. I have looked on some of these doctors lists on these websites and have tried some out in 2009-2011 and some just had HORRIBLE bedside manners. So if there are people in Oregon that have a neurologist /surgeons that they like and could give me info I would really appreciate it.