I am a 29 year old mom that was diagnosed with Chiari I in November 2016. I have the awful daily headaches with sensitivities, dizziness, nausea, shoetness of breath and tinnitus to name a few. Finding anyone to take me seriously has been a challenge, but I’m happy I’m not the only one dealing with this condition. You all make me feel like there’s hope in correct treatment.
I have trouble with my eyes a lot. I get blurred vision, double vision and constant pain behind my eyes. I just found out I have some damage to my right eye, and what my ophthalmologist says is early glaucoma (it probably doesn’t help it runs on both sides of my family). He is obtaining a recent MRI to check for papilledema and other conditions.
I finally got in with a Chiari specialist. Only problem - it’s in September. I don’t know if my body can wait that long. I have dropped hours at work to four every two weeks, pretty much the minimum to stay an active employee. I’m a mom of four children, two of whom are special needs. I have a lot on my plate daily, and while I’m normally strong, these symptoms are absolutely debilitating. I spend days at a time on the couch. I stopped taking meds except Botox because simply nothing works.
Needless to say, I’m ready to move on with my life. The constant pain and stress has me in shambles. Hopefully this specialist can help me!
Thinking of you all.