Hi! I’m new here. My husband was diagnosed with his Chiari I malformation in 2009 (he first became symptomatic in 2007). Recently his adult sister has been experiencing extreme headaches and is after extensive testing is going for an MRI at the end of this month. I am concerned that she will present with a Chiari as well.
My bigger concern however is that my 2.5 yr old daughter has been exhibiting odd behaviour which could be her just being a little kid, or it could be her expressing her discomfort in the only way she knows how.
To all you who have young children diagnosed: how young were they when diagnosed? How did they present their symptoms? What led you to having the MRI done?
Thanks in advance.