Welcome to Ben’s Friends.
I’m sorry to say this but your experiences with the medicos are NOT unusual, in fact the ‘Wait and Watch’ theory is very common. It was one I’ve received too, but not one I accepted, as my symptoms were progressing more and more. Nobody knows how bad your symptoms are but YOU and if things are progressing, my recommendation, don’t let them write you off. I had to get a 2nd, 3rd and 4th opinion before they took action. I had ‘odd’ symptoms for many years (Decades) that were written off, discredited and ignored by the medicos. I was told it was all a psych issue, that was until it all got to the point of emergency. Then they came out with the line ‘Ohh look what we found…’ as if it was all something new. GGGrrrrrr
ENT’s are highly qualified when it comes to matters regarding ears, noses and throats. But outside of their specializations, their knowledge is not so complete. PCP’s can be fairly good for your normal, ‘run of the mill’ medical needs, but anything outside of the ‘normal’ many of them have no idea (even if they won’t admit to that fact.) That attitude of ‘Well, I’m the dr, so I know. You? you’re just the patient… …you wouldn’t know…’ is arrogance at it’s peak. The fact of the matter is you know ‘You’ better than anyone and if you know things are progressing then you need to speak up. Don’t let them discredit your symptoms. Get a referral to a Chiari knowledgeable neurosurgeon and if you need another opinion, then get one.
Some neuros are of the opinion ‘If the tonsil is less than ‘X’ length, there will be no symptoms…’ but just read through some of the other members posts here. Some have a large herniation with minimal symptoms and yet others can have huge symptoms but only a slight herniation. As a guideline length maybe important but using 'length ‘X’ as a rule is not always right.
The medications maybe OK at hiding the symptoms, but the cause is still there. Long term use of meds to mask symptoms has it’s own risks. Keep a record of which meds you are taking and your symptoms too, it may help to show any patterns. It can also show the medicos you are being proactive in your own care.
Hope it helps
Merl from the Modsupport Team