I signed up to this forum yesterday when the hospital phoned to confirm my son’s diagnosis. He is 19 months old. The hospital had done an MRI as his head was larger than average and happened to diagnose him with Chiari while looking for fluid on his brain. Until yesterday I had never heard of this. The diagnosis was done over the phone and they are not seeing us for another month so I feel a little helpless at this stage. I did a lot of research last night and feel ever so slightly more in control of the situation. At this time I can see that he gets head pains when he cries a lot and I think he may have sleep apnea (which I read last night can be linked). I guess at this point I’m looking for a little support and knowledge on what to look out for (as he is unable to communicate with me properly due to his age). I have a million questions for the doctors already but would appreciate any info people have on key questions I should be asking.