Hey All! I’m 34 year old Mommy from Northern NJ. I was only “diagnosed” with Chiari recently after being injured in an automobile accident this past November. It’s still, up in the air, whether or not Chiari is truly the culprit of my symptoms, but it seems to make the most sense. (Both to myself and my PCP). If anyone has any suggestions as to a good Neuro or NS - please send them my way! (I say “diagnosed” bc so far my Chiari has been disregarded as congenital and an incidental finding on MRI. SMH)
Since November, I have been suffering from a headache and neck/shoulder pain - daily. It can vary from slight pressure to debilitating pain with nausea/vomiting. My face is constantly tingling as if Novocaine is wearing off. It’s quite annoying to say the least. Even more concerning is severe weakness and my right leg - and now most recently my right arm. I constantly have a limp and have to frequently use a cane on my “bad days” where I’m quite literally dragging my leg behind me. I actually have to lift my leg with my hands to get into my truck or over the side of the bathtub. Now, I have burning pain in my right arm that is seriously effecting my grip strength.
Anyway - enough of my rant! Thank you all for being here. I’m sure you all feel the same way I do: It is really nice to know there are others who understand what you’re going through!!