Hello! First I want to thank this group for supporting me and my family during my son, Sammy's, struggle with Chiari and decompression surgery. Sammy is doing much better now. Sammy first presented when he was 6 years old. He was never a classic Chiari presentation, which made the road to his decompression longer than it may have been otherwise.
My concern right now is his little brother, Benny, who is 5 years old. Benny is starting to show concerning symptoms, some of which are classic (headaches worsening with bowel movements) some of which remind me of Sammy (torso, stomach and leg pain)
I am wondering if anyone on this board has seen Chiari repeat in a family, specifically in a sibling group. I would love to hear your experience.
Thank you in advance for your time.