This is my Syrinx and Chiari Malformation it’s huge and goes from C2 to T12 I’m terrified I’m not going to live much longer if anyone knows any info about this please let me know I have a Neurosurgeon Dr. Ankit Mehta that wants to do Decompression surgery and possibly a shunt. I’m so scared of ending up paralyzed or dead… so far my symptoms have been
Weakness in my arms and legs but I’m still able to walk and pick things up so far. I get tired very easily though
Numbness all over from my forehead to my feet
Double vision in one eye I’m blind in the other the blindness was from a pre existing injury but the double vision in my good eye is new
Pain occasionally in my neck and back
Bowel and Bladder difficulties more so bowel sometimes I don’t have a movement for over 24 hours after eating a decent sized meal and if I do it’s a small amount… sorry I know it’s gross to talk about that.
Please any comments are welcome I’m driving myself crazy waiting for surgery and I’m scared of my future I’m 25yrs Old if anyone has any knowledge of surgical outcomes let me know I’ve read a lot of bad things about it… I hope I atleast don’t get worse…