Saw the neurosurgeon yesterday. He says No to a Chiari-related respiratory difficulties (chronic progressive dyspnea, respiratory failure), because it is not big enough (5.5mm) to block flow and/or affect nerves related to breathing. He suggested a neurologist visit to further evaluate. He was OK for a NS, but till rather arrogant and somewhat dismissive. His after visit report had inaccuracies (so common) such as stating this or that test evaluation was normal when he did not even do the evaluation. I see this a lot. Its as though the docs tick some boxes on a form that say yeah I did it and its fine. May or may not matter for diagnosis or treatment but it speaks to their honesty and integrity imo.
Also had the sleep study, but only slept a couple hours. The tech said I had no problems during that time and suggested the at home oximetry could actually be wrong (the oximetry showed 70 events an hour with desaturations below 88 most of the 7 hours). Wow. THAT wrong? So confused, but of course I would be thrilled to not need o2 or pap machine.
I know nothing more than I did 2 months ago when things went awry again (leading to an ER visit and a re-investigation into my chronic dyspnea and hypercapnia).
But, I really hate the medical industry and generally just accept my situation and follow a healthy lifestyle. For so many reasons, the whole process makes me feel worse - stress, frustration. A lot is about attitude both mine and theirs. I am not obsequious or servile enough for most. I see them as a hired consultant from whom I expect intelligent considerate information. Too many expect me to kiss their precious butskies.
Maybe if I get bad enough I can continue the process. For now, I think I will go about life as well as I can and skip the docs.