Chiari Online Support Group

Frustrated with Chiari

My vision is getting so much worse. I look at my phone see 11 text messages, There’s 1 ! My vision is always sooo blurry and now Megga Double vision. Without At Least readers I can’t even type on my iPad. To read print I have to add a Magnifying glass along with My Readers. I’ve increased the strength of readers…it’s just very Depressing ! Along with all the Damn PAIN !!! Headaches EVERY DAY ! Numerous I swea it’s as if they just don’t go away…
I Thank GOD I have a Worker come in and she does clean my bath tub, does the vacuuming. Dusting .i can’t Bend over without making things MUCH WORSE ! … My Neck is really bad. There’s an area that is swollen. I went and saw My Neourologist actually the P.A She understood I am in a lot of pain acknowledged it’s very swollen. Yet tells me, We could a mri (however there’s too much radiation ) LMBO ! WHAT !? … Seriously ! I could have just fell over out of my chair ! From now on I’m taking someone’s with me to my appts. I’m Horrified by the Lack of Careful I’m Getting… I reach to get my coffee out of the Cabinet and get awful pain in my shoulder and the region that is swollen. I’ve told them this. They just don’t seem to Care…
I don’t get it? … Ya know a Pain Doctor put me on Long Acting Pain Meds almost 20 years ago and I didn’t want to have to take the money then and I don’t like it now, However It’s the only one that Works ! And I’m allergic to others. And now The Government is changing things with it. So Ive been wanting to Get a Medical marijuana license and TRY the high cbd alone. And see if it will do a good job, to get off the long Acting opioid. But ya know ,I’m frustrated, because I have a Primary who isn’t Against Marijuana she does not understand CBD . And I can tell you that My first dose of high CBD wasn’t like going to the ER Andy getting two shots of Morphine (which I shouldn’t have because it makes me seriously Ill) they have to feed me massive amounts of zofrane ). Anyhow. I’m fighting to do things the best way. I can. I’ve NOT had Decompression as of yet. I was scheduled at one point and I cancelled I just Didn’t feel Comfortable…Maybe one day I will? . It feels good to write here. A safe place… Thanks for reading this. And adding anything if you so choose. I’ve been feeling frustrated with Chiari… Blessings to you NJ