I found out I have a chiari malformation as well as hydrocephalus due to aqueductal stenosis. I am in my late 20s and work as an ICU nurse. I joined this group so that I learn more about this condition and hear about your experience with it.
I have had migraines occasionally since early childhood, but after having a mild case of Covid in December of 2020, I started to have almost daily migraines that were so severe I was projectile vomiting. I also started experiencing heart palpitations and dizziness, but my cardiac workup was negative. I went to see a neurologist in July, and he ordered an MRI. He also put me on nortriptyline for the migraines, and it was quite effective at controlling my pain. However, around the time I started taking the nortriptyline, I started to have mood swings. I have always been calm and slow to speak, and not one to lose my temper. But all of the sudden, I would get so angry at minor triggers that I was almost seeing red. After I realized what was going on, I tapered off the nortriptyline. I have been off it for three weeks now, but my emotions are worse than ever. I still get angry, although I am aware of the problem and am sometimes able to stop myself before I fly off the handle. But I also get horribly anxious to the point of having panic attacks (I hadn’t had one in 7 years but now they’re back,) depressed, and overwhelmingly sad. I cry at least five times a day, over the smallest things. Whatever emotion I feel, I experience it at 10x the level that I normally would.
Has anyone else experienced extreme emotions as a result of chiari? I really thought the nortriptyline was causing it, but now I am worried because my emotions have only gotten more intense since I stopped taking it. I’m wondering if my condition is just simply progressing. I would love to hear about your experiences with these symptoms. Thank you!