I sent this question about Dr Patel over a year ago.After seeing about 15 specialists and getting no relief from constant dizziness while upright, it was time to find a new doctor .The LP shunt that was put in @ Duke University and 1 1/2 years of driving 10 hours round trip for adjustments every 6 weeks did not work. My symptoms were worse. I had been looking at this site and following a person that seemed to have my symptoms( her name was Pebbles) I watched her outcome of surgery. I also had been watching Quiltaholic- a patient of a N.C. neurosurgeon. I read that a upright MRI was important(thanks Jen). I scheduled appts with Dr Rosner and Dr Patel. I saw Rosner first and had a lengthy visit and tests with cardiologist and more MRIs. After being fitted with a Philadelphia collar, Dr. Rosner wanted to schedule me for a decompression surgery. I had too many questions to sign up for surgery that same day. I got a upright MRI before making any decisions. It showed my problem (Thanks Dan Culver for answering my questions and being so helpful) I sent several questions to Dr. Rosner after the Upright MRI. Silence speaks volumes. I next saw Dr. Patel. He listened to me , was very honest and humble. We discussed MRI findings and decided on a surgery. I had a O.C. fusion on 10-6-14. I am recovering very well. My dx was cranial instability and basilar invagination.Guess what? NO DIZZINESS when upright!!! I can't stop smiling. Thanks to God for leading me to the right doctor. I now have to get the L. P. shunt removed and regain neck muscle strength. I have not felt this good in years.
There was a symposium held @ MUSC on 11-20-14 by CSF. I met some amazing people that have shared in my frustrations of finding help . We need to be our own advocates and not give up. There are some great physicians out there. I was told the symposium will be on the CSF.org website in the near future Please check it out and share it with your family physicians and anyone interested. Thanks to everyone who takes the time to share their information. I am forever grateful.