I'm reaching out to anyone who has neurologists, neurosurgeons, and/or pain doctors that you would recommend in Arizona. I was diagnosised in November 2009. I got a second opionion in January 2010. I had my decompression surgery on February 11, 2010. I have had a totally of 8 surgeries since then--7 chiari related and my gallbladder (that was the icing on the cake!!) I didn't have a neurologist before my surgery. I was sent straight to a neurosurgeon. It's difficult to find a doctor who understands or even knows about Chiari malformations. It is even harder getting a doctor to see you once you have had surgery. I was assigned a different neurosurgeon for the last 3 surgeries, but he was only here for a year. He was absolutely wonderful, but he is now in Florida. I thought I had finally found a neurologists that would work. He saw me on a consultation basis as a favor to my absolutely wonderful primcary care physician. He has politely refused to see me again stating that I was too much of a liability. I have a vp shunt that was placed at the wrong angle and then later determined that I never needed it in the first place. I started seeing a neurologist in July 2011. I have seen him four times and spoke with him on the phone more times than I can count. I am having symptoms of a csf leak again. I am miserable and have only been able to work 5 days since January 3 of this year. Everytime I go to him, I feel like it is the very first appointment. This last Tuesday he was looking at my last scan and made the statement that it looked like I had a foreign object on the right side of my head and then asked if I had a hair clip in my hair during my scan. The foreign object was my shunt. He at least knew about the Chiari, but I had to remind him about the shunt, prior csf leak and psuedomeningeocele. I have to do this everytime. I have to trust my life in this docs hands, but he can't remember the most basic information about my case. He has never looked at my scans. I have brought them to every appoinmtent. I can't trust him to make a medical decision if he doesn't have all the facts--even though the facts are right under his nose in my very thick file.
I can't financially afford to go out of state. I have to find someone in the state of Arizona. Any names would be greatly appreciated.