I was diagnosed in June 2020 and am yet to see a neurosurgeon (Feb 2021). (Stupid Covid).
I get the what seems usual/most common symptoms headaches, dizziness and tinnitus (also on the waiting list for an ENT appointment too to see if they can help at all).
But am wondering about other things that I’ve always thought was normal as I’m so used to it now…
Swallowing. I sometimes have difficulty swallowing, between forgetting how to swallow and the food feels stuck in the back of my mouth/top of my throat and sometimes it is like I can feel it traveling down my throat/chest, but also at times it hurts to swallow. Does anyone else get this?
Pars Defect. Age 15 (I am now 26) after an MRI I was diagnosed with Pars Defect, from getting sciatica at such a young age they wanted to investigate. When reading through I am a little lost with the difference between Pars Defect and Spondylosis, which seems to be common amongst Chiari Sufferers. I still get the sciatica but have just learnt to put up with it, thinking that it was to do with the Pars Defect.
Bone cracking. Most of my joints crack. It relieves a lot of tension and the relief I get from cracking is significant. The main areas are my neck and back. However, my hips usually crack a lot too, but recently I have been unable to and have been get a lot of stiffness and pain in them now.
Sleep issues. I had colic when I was a baby, 9 month worth (sorry mum and dad!) and I have never been a good sleeper, I would sleep maybe 2/3 hours a night all through until I was about 13/14. I have also been told when sleeping in the same room as someone else, that I hold my breath in my sleep. I have noticed that I occasionally hold my breath unintentionally in the day too.
Any thoughts/experiences/information would be so appreciated, having not yet been able to speak to a neurosurgeon I don’t want to waste my time with them on things that might not be relevant.