I have been working with Hopkins since mid-October 2011 with the working diagnosis of POTS (postural orthostatic tachycardia syndrome) then in late November I got diagnosed with CM. My PCP familiar with CM stated that I my POTS was caused by CM and I should change who I see at Hopkins. Since Hopkins did not have my records at this time it was not a problem. When they received my records they referred my to John Weingart (http://http://www.hopkinsmedicine.org/neurology_neurosurgery/expert...). He reviewed my records and within 10 days I had an appointment for 9 days later ; had to reschedule but that is another story for another time.
Whoever they assign you to get everything scheduled please do not hesitate to contact them, I called my rep, emailed , and faxed just to keep myself in the loop and send some of the reports I have, but also to make sure they were working on my case as well.
First get your referring doc to gather all pertinent test info (hand carry you MRI films or CD). I think having the medical information from your referring doc ready to go is the main and most expedited way. Next, go on their web site (http://www.jhu.edu) to schedule. Complete the forms they will send and from when you select your dates they should be able to get you in.
They seem to be able to get you in quickly, mine was under a month after receiving the info the doc was to send (which is where my wait came from not Hopkins). Here is the original email I received from Hopkins :
Dear: Prospective Patient:
Thank you for selecting Johns Hopkins Hospital for your medical needs. Johns Hopkins USA is delighted to help you receive the best possible care at the #1 ranked hospital in the United States.
To request an appointment or information regarding treatment at Johns Hopkins, please follow the steps below. As soon as the requested information is received, our Johns Hopkins USA Medical Concierge will select the most appropriate physician to review it. At that time, we will inform you of the recommended treatment and/or confirm the date and time of the appointment at Johns Hopkins.
STEP 1: Complete Appointment Request Form:Please complete all information requested in the attached Appointment Request Form and return it via fax or e-mail.
Please include an enlarged copy of your medical insurance card (front and back).
STEP 2: Send Patient’s Medical Reports: Please send via e-mail, fax or courier a complete medical report in English with the above completed Appointment Request Form. The report should include the patient’s diagnosis, notes of diagnostic, radiological and pathology studies, and a description of current treatment. All pertinent Films should be hand-carried to the Appointment.
STEP 3: Send all information to my attention at our administrative office:
( The person they assign will have this info for you.)
Please be assured that Johns Hopkins USA is committed to protecting your clinical and financial information.
We hope the above step-by-step process is helpful. Please do not hesitate to contact us if we can be of further assistance.
If you would like I can send you the other attachment(s) that came with this send me a message and I will get it to you. I have my appointment on Feb. 7. If you want I can get lodging info for you while I am there, just let me know.
Hope all goes well and welcome.