Oh my goodness! I thought no one else - but me - had “fasciculation issues.” I’ve had them all my life. Some of them lasting for months. One behind my ear lasted for 3 years! I just assumed it all had to do with being athletic. Before Chiaris, I was a marathon champion - trained super hard, ate a pristine diet, etc. AND… lived with non-stop fasciculations all over.
But, even long before I was into athletics, I was being tormented with fasciculations - now that I think about!!! When I was about eight or nine - one of my calf muscles was twitching and wiggling non-stop for hours. I showed my mom and dad the involuntary movement. My dad said something like, “I think you have worms inside you.” Wow. I believed that silliness for years. It wasn’t actually until the dawn of the internet that I was able to do some research on fasciculations - and found out that the main causes were either: a reaction to a certain medication/chemical -or- some variety of permanent central nervous system damage. Back then, I was clueless about the nerve damage. So, I assumed fasciculations were caused by stuff I ate. Except - I could NEVER get them to stop - even with the most wholesome diet!
Guess what?!?! Good news! I have got them to stop!!! I mean, I have had the Chiari decompression surgery in 2012. But, even after the decompression surgery, I still had the fasciculations jusst as bad as ever. Hmmmm.
The fasciculations were FINALLY put to rest when I started taking a low dose of Amitriptyline post-surgery for continuing nerve pain. Yay! I can never take more than 3-8 mg of Amitrip on a regular basis because 1) I have permanent liver damage from contracting hepatitis when working overseas… and 2) the side-effect of amitriptyline is extreme hunger pains/cravings. If I keep my dose under 8 mg. I can avoid the side effects. Yet - that amount is enough to stop the wiggles and squiggles of fasciculations. YAAAYYYY! Every now and then, if I have too much coffee, sweets, Pepsi - the fasciculations can get triggered, though. If I am desperate, I can smother any fasciculation temporarily with a dose of Lorazapam. (I have an As-Needed-for excessive-nerve-pain prescription of Lorazapam) I am on the low-dose of Amitriptyline because the Chiaris has left me with non-stop nerve pain. Even after the surgery. But, the stuff works real well for me. Stops the pain AND the wiggles!