Chiari Online Support Group



I met with my 10 month old neurosurgeon last week and he blew me off I don't see her nurlogist until novenmber and I have so many questions to ask them and its driving me and my husband crazy. the baby was just diagnosed with cm1 and I asked the nurosergon about her failure to thrive and sensory issues and he told me that has nothing to do with her condition. does anyone know what the out come is going to be for my baby? Shes only 10 months old and im very concerened with this.


Hi, Donna. I am going to repost your inquiry in our Parents’ category, so you receive adequate responses. I am sorry to hear of your family’s difficulties. I hope you find answers and relief soon. Hopefully other parents here may have experiences they can share.


thank u Laurie