Online Chiari Information Resources
U.S. Employment & Disability / U.S. Health Insurance
Social Security Disability (About this site: Applying for Social Security disability and SSI disability benefits can be difficult due to how long a claim can take and the high chance of being denied. But applicants who are denied can learn about the system and file an appeal. The purpose of this site is to distribute information that is typically impossible to get from the representative taking your claim for SSD and SSI benefits.)
JAN - Job Accommodation Network If you have a question about workplace accommodations or the ADA and associated legislation JAN can help you.
Finding a Doctor/Surgeon
Please see the Ben’s Friends Doctors Directory.
For U.S. pediatric neurosurgery: The American Board of Pediatric Neurological Surgery (the list of board certified neurosurgeons guarantees they did a fellowship, have a practice that is at least 75% pediatric and meet at least minimum requirements).
U.K. Employment & Disability
Posterior Fossa Decompression (non graphic illustration of a surgical procedure)
The Chiari Book: A Guide for Patients, Families, and Health Care Providers - John J. Oro and Diane Mueller
Chiari Malformation Patient’s Sourcebook - Jennifer Wetzel and May Chodron
Chiari Malformation: Causes, Tests and Treatments - John Hewitt M.A. and Michelle Gabata M.D.
Arnold-Chiari Malformation: A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References - Icon Health Publications
The Official Parent’s Sourcebook on Chiari Malformation: A Revised and Updated Directory for the Internet Age - Icon Health Publications and Health Publica Icon Health Publications